TI Methods Speaker Series
This event is over. Registration is now closed. Scroll down to view a video recording of this event. Click here to view a list of all talks offered in 2020 as part of the TI Methods Speaker Series.
The TI Methods Speaker Series are offered free of charge and everyone is welcome, but space is limited, registered participants will be given priority. The event is usually held at noon on the last Wednesday of each month in Rudy North Lecture Theatre (CBH 101) in the Centre for Brain Health, UBC Point Grey Campus. During the COVID-19 pandemic the TI Methods Speaker Series are offered exclusively online.
WHEN: Wednesday, March 25th, 2020 from 12:00 to 1:00 PM
WHERE: Due to the COVID-19 pandemic, this session was held exclusively online.
TITLE: Basics of Patient-Oriented Research: A case study in Patient Engagement in Transplant Research
- Kristi Coldwell, Transplant Research Foundation BC
- Lynne Feehan, Knowledge Translation Lead
- Larry Mróz, Research Services Lead, BC SUPPORT Unit
About the topic: This presentation introduced to the basics of Patient-oriented research (POR) as defined by the Canadian Institutes of Health Research’s Strategy for Patient Oriented Research (SPOR). The speakers described how POR differs from traditional research by engaging patients as research partners, introduced basic concepts and practices in patient engagement and offered a patient partner’s experiences of having a heart transplant that have helped shape her role in patient advocacy in the Transplant Research Foundation’s practice and research. The overall aim was to help participants gain an understanding of how patient engagement can help bring the patient voice into research to ensure that research products are relevant to their intended audience.
If you missed the live presentation scroll down to view the video recording. Also, you can click here to view/download the handout, which includes a copy of the slides. NB: for educational purposes only. Some images may have copyright protection.
About the speakers:
- Kristi Coldwell is the Senior Advisor for Transplant Research Advocacy at the Transplant Research Foundation of BC. In this role she has helped TRFBC moved towards greater integration of meaningful patient and family engagement in their research and overall practice. Having undergone a heart transplant as a teenager, Kristi is acutely aware of the role research plays in improving outcomes and enhancing quality of life. As a transplant recipient, she has unique insight and appreciation for the role of patients in prioritizing their care as well as how patient and family partners can shape and inform research.
- Lynne Feehan, PhD, is the Knowledge Translation lead at the BC SUPPORT Unit, whose passion is supporting health researchers to do and share patient-oriented research through meaningful engagement of patients and the public partners throughout the research cycle; from the formation of the research idea through to adoption of research findings in the health system. She is also physiotherapist and clinical associate professor in the Department of Physical Therapy at UBC with many years working in the health system so also understands the realities of trying to access, summarize and adopt evidence to inform practice and policy decisions in the health system.
- Larry Mróz, PhD, is the Research Services Lead and Patient Engagement Coordinator for the Vancouver office of the BC SUPPORT Unit, where he matches researchers with the support services they need to build their capacity for doing patient oriented research. Part of this work is to provide patient engagement consultations and training to help researchers meaningfully engage patients as research partners. His background is most recently qualitative health research – he has doctorate in nutrition which focused on men’s experiences of diet change and prostate cancer.
About the TI Methods Speaker Series: The TI Methods Speaker Series are offered free of charge and everyone is welcome, but space is limited, registered participants will be given priority. During the COVID-19 pandemic the TI Methods Speaker Series are offered exclusively online. Click here to view a list of all talks offered in 2020 as part of the TI Methods Speaker Series.